Resources

General Resources and Guides

Starting Point Guide – A resource directory for Washington State families who have children with ongoing health conditions or special needs. The Guide provides programs and services for your child and family. The Guide is organized by type of service. Use the alphabetical list on page 4 to find an organization by name: http://cshcn.org/wp-content/uploads/files/Starting-Point-Guide.pdf
ParentHelp123 – For Washington State residents, this website provides information on topics such as health benefits, food resources, pregnancy, child development and child care. There is also a section specifically for families who have children with special needs: http://parenthelp123.org/
Informing Families – A resource provided by the Washington State Developmental Disabilities Council. It offers news and information to individuals and families that empowers them to be active participants in planning and building a network of support and opportunities: http://informingfamilies.org/
Council of Parent Attorneys and Advocates – COPAA is an independent, nonprofit, national organization that protects the legal and civil rights of students with disabilities and their families: http://www.copaa.org/
WA State Parent to Parent programs – Support and Information for families of children with developmental disabilities or healthcare needs: http://arcwa.org/getsupport/parent_to_parent_p2p_programs
Washington Autism Alliance & Advocacy – Helping families access ASD & DD health insurance benefits, effective services in schools, and supportive community-based services, regardless of their personal financial situation: http://www.washingtonautismadvocacy.org/updates/
Wraparound With Intensive Services (WISE): Video describing this program which is for children and youth with complex behavioral health needs: http://informingfamilies.org/wise-video/
Families for Effective Autism Treatment (F.E.A.T.): Information about their services and Resource Guide – a database of WA based resources for ASD children and adults
Care and Respite– A guide from the Arc of King County to help you understand respite services and navigate systems to access care. You will also find resources to help you find a care provider in your home or in a community-based setting.
Seattle Children’s Hospital Autism Center – provides assessment, diagnosis, treatment and support for autism spectrum disorders
Seattle Children’s Center for Children with Special Needs County Resources List – County specific resources
Cost Guide for Families with a Disabled Child – helps parents learn about lifelong costs associated with cerebral palsy and other disabilities
Seattle Children’s Center for Children with Special Needs Resource Guide – Directory of statewide resources for advocacy, child care, dental care, insurance and more
Disability Resource Center – Resources for Individuals and Families with Disabilities or Special Needs: provides information and links to resources including disability organizations, raising children with special needs, K-12 special education, transition resources and employment information
Information on Children and Mental Health Issues – http://detoxrehabs.org/children-suffering-mental-health-issues/
Navigating Your Way: ages birth to three – provides a bird’s eye view of services, supports and resources
Navigating Your Way: ages 3-6 – provides a bird’s eye view of services, supports and resources
DDA Access Series 1 – Eligibility
Required Documentation for DDA Eligibility Determination – March 2017
Navigating Your Way: Ages 6-14– provides a bird’s eye view of services, supports and resources
Navigating Your Way: Ages 14-21 – provides a bird’s eye view of services, supports and resources
Dad’s Who Have Children with Special Health Care Needs – Taking Care of Yourself
Dad’s Who Have Children with Special Health Care Needs – How To Be of Help
Washington Mental Health Referral Service for Children and Teens
ABLE Accounts and Special Needs Trusts Can Be a Winning Combination
DDA Eligibility Flowchart

Planning and Organizing

Planning and Record Keeping: Organizing Your Child’s Information– Details the Why, When, What and Where of organizing children’s health information: https://cshcn.org/planning-record-keeping/care-organizer-for-parents/
Interactive Planner for Caregivers – A free online virtual assistant to keep you and your kids organized
Care Plan Forms -These forms can help you plan for doctor appointments, introduce your child to new people and share vital information about your child during emergencies https://cshcn.org/planning-record-keeping/create-your-own-care-plans-for-parents/
Understanding the Difference Between ABLE and Endowment Trust Funds