Listen in as Daniel DeFabio shares his experience and perspective as a father of a son with a rare disease called Menkes. Daniel has written an article called”How Parenting a Dying Child Has Changed All My Expectations” for The Mighty and is Co-Founder of the Rare Disease Film Festival.
https://podcasts.apple.com/us/podcast/films-and-fatherhood/id1485249347?i=1000464117092