Kyiv and Lviv, Ukraine (CNN) Vova doesn’t know there is a war raging right outside his window.

He doesn’t understand the meaning of the air raid sirens. He is unaware of the destruction caused by Russian bombs dropping on Kyiv. He just wants to build towers from his toy blocks and press the buttons on his mom’s phone that make it play songs and cartoons he likes.
Vova, a pet name for Volodymyr, is 17 and has Opitz-Kaveggia syndrome, a rare genetic condition that causes severe intellectual disabilities. He needs round-the-clock care and anti-seizure medication that has become impossible to obtain as Russian troops close in on the Ukrainian capital, according to his mother, Natalia Komarenko.
“We are unable to get the medicines we desperately need — anticonvulsant drugs Levetiracetam and Lamotrigine. He has been taking them since he was 10,” she told CNN.
Evacuation is not an option for the Komarenkos because Vova’s condition makes travel extremely risky.

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